News & Publication Learning Journey
Over a one-year period, approximately 550 individuals from across San Francisco were engaged in a collaborative, introspective, and systematic exploration in which community members and researchers worked together to identify strategies for overcoming Advance Care Planning (ACP) barriers and jointly developed educational initiatives to inspire people of color to actively participate in ACP. These community-led workgroups designed well-received events that increased ACP engagement over a relatively short period. Their objectives encompassed both implementing pilot events as part of the Learning Journey and inspiring their communities to build on the insights and pilot programs to sustain these efforts in the future.
Summary of Key Learnings
- 1. A community-led learning process is not only feasible but also capable of eliciting interest, engagement, and action.
- 2. While approximately half of the people surveyed had heard about ACP, only one-third had actively engaged in ACP.
- 3. Co-developed community events represent a promising approach to fostering awareness and trust in ACP.
- 4. There are existing ACP tools that are linguistically and culturally tailored, and appropriate for use.
- 5. Despite the availability of some culturally and linguistically tailored ACP tools, communities still felt the need to create new culturally specific materials and activities to enhance relevance and foster engagement in ACP.
- 6. Engaging in ACP as a way to help families, caregivers, and loved ones is a compelling message that resonates with all communities.
- 7. Similar strategies to engage people in ACP were identified across communities.
- 8. None of these communities are monolithic.
Journey Report & Peer-Reviewed Publications
Click to download the
2023 Learning Journey Report
- "We've Got to Bring Information to Where People Are Comfortable": Community-Based Advance Care Planning with the Black Community, Journal of General Internal Medicine.
- "Advocating for what we need": A CBPR approach to advance care planning in the Latinx older adult community, Journal of the American Geriatrics Society.
- "At the end I have a say": Engaging the Chinese Community in Advance Care Planning. Journal of Pain and Symptom Management.